![\"Jenny](\"https:\/\/connectingfamilies.ournormal.org\/wp-content\/uploads\/2017\/11\/fam-jerksten-e1525693226343.jpeg\")
What do your family like to do?<\/h2>\n
Fabian used to be very interested in soccer, but now his biggest interests are Pok\u00e9mon, video games and using his iPad. At home we have pets; guinea pigs and aquarium fish that we take care of together. As a family we also like to be outside and do outdoor activities together. During summer time we like to go sailing, and we also dedicate a great deal of time to go fishing.<\/p>\n
What do you think that a digital meeting place like Our Normal can mean to families like yours?<\/h2>\n
If you find people that already have asked the same questions that as new parents are wondering, it means that families\u00a0 do not have to reinvent the wheel all over again. It would have been awesome if a community had been available 8 years ago when we where new, lost parents.<\/p>\n
Sometimes the needs we have as families are the same even though the diagnoses are different. This is the main reason for us to join Our Normal\u2019s community; to have the opportunity to support others with similar needs like us!<\/p>\n
It would be great if a community like this also could give families new friends to hang out with, and make us feel less lonely. In this case it is not the experience of a certain diagnosis that is important \u2013 it is the possibility to find others who also have specific experiences to share that matters. For example it would be great for us to find a family to go on a ski trip together with!<\/p>\n
Why do you wish for more families to join Our Normal?<\/h2>\n
Since we have got the experience of a very rare syndrome, there are no family camps or societies directly addressed for us. Therefore we hope that even more families want to join the community to support each other. Regardless the experience of a child with a very rare disability or not \u2013 the needs can be very similar!<\/p>\n